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Why I Have Endometriosis but Don’t Identify as an ‘Endosis’ – How we can Make the Community More Inclusive

Nearly five years after my diagnosis, I was brutally reminded that endometriosis does not conform to the rules. 

“You see this?” My kind but completely unfazed surgeon pointed to the MRI images on display. 

They informed me that where we would usually see more defined spaces between the uterus the left ovary and colon, this wasn’t the case on my scan. My endometriosis had formed plaque that had bound them all together and the disease was now covering most of my sigmoid colon.