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Matt Hancock is a Disgrace, I’m a Celeb Won’t fix That

Conservative MP Matt Hancock will appear on I’m A Celebrity… Get Me Out of Here! It’s a disgrace. In a just world, the former Health Secretary would face severe political and criminal consequences for being complicit in the following, a list of spite or stupidity which barely scratches the surface of his crimes:  

  • The deaths of tens of thousands of disabled people.  
  • Discharging elderly patients into care homes at the beginning of the pandemic without testing. 
  • Not providing proper PPE for NHS staff. 
  • Confusing messaging put people in danger and made enforcement difficult. 
  • Forcing DNR orders on disabled people.  
  • Undermining social distancing rules. 

He lied. He lied. He lied. He lied.  

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Why now, More Than Ever, we Need to Reclaim Rest as a Political act

“Convalescence needs time, and the value we place on that ultimately comes down to what our politicians will support,” writes Dr Gavin Francis in his new book, Recovery: The Lost Art of Convalescence. I’m reading his book in the yellow armchair in my office, one of two armchairs that have become the centre of my world since I contracted M.E. six years ago – a post-viral illness that left me housebound. 

Rest and convalescence both seem like old words, belonging to by-gone eras. But their value, both as tools of recovery and an acknowledgment of our fundamental humanity, has never been more important than it is today. 

In 2015, when a virus first laid me low, I had no idea that trying to push through my symptoms would leave me permanently disabled. But this is now the reality facing millions of people struggling to recover from Covid, with similarly little support. 

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Lack of Shielding Guidance Means Disabled People Have to Choose: Health or Income

During Prime Minister’s Questions on 19th January, Boris Johnson announced that all Plan B Covid-19 restrictions, including mask-wearing, would expire as of 27th January.

It was the news much of the country had been waiting for, a return to normality free from Covid-19 passes, working from home and mask mandates. Some even dubbed it a second ‘freedom day.’ However, the announcement left disabled and clinically vulnerable people like me in fear. 

We have been amongst the most vulnerable groups in society for the entire pandemic. We were initially told to shield and those in public-facing positions were given extended furlough schemes once retail and hospitality began to open again after the first lockdown.

Yet, despite accounting for 17.2 percent of the population but nearly 60 percent of Covid-19 deaths, we’ve largely been forgotten about and left to our own devices. Shielding and furlough schemes came to an end long before we had any real control over the virus.

And now, without the few government restrictions that were in place to reduce transmissions, we’ve been left feeling more vulnerable than ever.

So, while the majority of the population are no longer concerned about Covid-19 — particularly given reports that Omicron is a “milder” form of the virus than previous variants — for vulnerable people with compromised immune systems and underlying health conditions, the impact of catching it could still be dire.

It’s forcing many of us to make an impossible choice. Income or safety?

I have CFS/ME, a chronic health condition that causes debilitating fatigue, brain fog, muscle pain and a host of other symptoms. It also means I’m more vulnerable to catching illnesses and makes it more difficult to recover when I get sick. 

I work in retail, a public-facing position that means I’m confronted by maskless shoppers on a daily basis. And, between growing numbers of people not wearing masks and a study that shows that shops pose the greatest risk of catching Covid-19, more often than not, I dread going to work.

I’ve even considered quitting on more than one occasion.

But I can’t. My public-facing retail job accounts for over half of my monthly income. And as the sole income earner, it’s something I’m not in the financial position to give up. On top of this, without the fear of Covid-19, it’s a job I really enjoy doing. It’d be devastating to leave. 

I’m not the only one having to make this choice. I spoke to three disabled people who feel like they’ve been forced to choose between their health and livelihoods.

Anonymous, she/her, CEV due to severe asthma

One woman, who chose to remain anonymous, has encountered ableism almost daily since the end of the shielding programme. “Even though the government’s advice has been to work from home if you can, and I’m not a key worker, my manager regularly goes into the office and the expectation is that I should too.”

At a recent meeting, her manager told her to consider looking for a job elsewhere if she planned to continue working from home. “People say ‘protect the vulnerable and disabled,’ but every action they take demonstrates that they don’t care,” she says.

“Like everyone else, my mental health took a battering during the lockdowns, but to be treated like I’m workshy instead of somebody desperately trying to keep themselves safe has made it plummet like never before.”

Mono, she/they, POTS and asthma

Mono had recently qualified as a phlebotomist and medical assistant when Covid-19 hit in March 2020. “Due to having POTS — a chronic illness that affects my heart, respiratory and immune systems and blood pressure — as well as asthma, I knew I couldn’t work in person in the field as I’d be at a very high risk of infection.”

After trying a career change that ultimately didn’t work out, she had to fight her school in order to delay her clinical rotation. “After months of postponing, they decided to send me to clinical rotation in the middle of a surge and I ended up doing it.” They felt like they didn’t have a choice.

Sam, they/them, EDS, dysautonomia and chronic fatigue

And for freelance artist and museum worker Sam, they’ve lost a lot of income during the pandemic due to being unwilling to put themself at risk. “The fear I have is that long Covid would cause a relapse of the worst impacts of my health conditions, resulting in the inability to work for months.”

Just a few weeks ago, Sam made the decision to pause their current work in community engagement at a museum in Yorkshire. “Very few staff members wear masks and when Covid cases rose significantly with the Omicron variant, I felt it would be safer for me to work from home. But, my role would be impossible to do remotely with everyone else working on-site.

“It’s unfair that I’m being forced to take a financial hit due to not feeling safe at work but without any direction from the government to keep vulnerable people safe, the decision to protect my health as someone with a chronic health condition is made to feel like a personal choice.”

It’s a decision nobody should have to make. But with the government’s latest round of restriction relaxations, far too many of us are having to make that choice.

Disabled people are once again being forgotten about and being forced to choose between financial stability and our safety is genuinely terrifying.

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It’s Exhausting to Constantly be Told Your Life is Worth Less Than Others

Trigger warning: Disabled deaths as a result of COVID-19

It’s hard to be told that your life is worth less than others; it’s even harder to have it repeated across social media, videos, posts, D.M.s, comments, political and medical coverage, and casual chats.

It’s overwhelming, unrelenting, dehumanising.

Consider a world in which the statement: I deserve to live, even if it slightly impinges on your life, is a radical act – a radical suggestion. You’re already living in it. It’s not a hypothetical scenario. You live a somewhat gilded existence if you don’t see its structures or feel its effects.

Disabled people live in unadorned cages.   

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You Should be Thankful you Haven’t had COVID-19, not Envious

 Trigger warning: this article features discussions of COVID-19 deaths, especially of disabled people and what is considered by many as eugenics.

Imagine witnessing death and destruction on a large scale. You see it on rolling 24-hour-news, in newspapers and on social media. It invades every part of your life as you see a daily death toll and the stressed and desperate faces of frontline staff. 

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The New Year’s Resolutions the UK Government needs to Make for Disabled People

The last two years haven’t been fantastic for anyone — but they’ve been awful for disabled people.

On January 2, 2020, Prime Minister Boris Johnson shared a tweet that is dripping in irony, one global pandemic and two variants of concern later. “This is going to be a fantastic year for Britain,” he writes, giving his best Churchill impression to the camera as he sticks his thumbs up as if to represent some kind of universal reassurance to the nation. 

Two months later, the country went into a national lockdown — with The Times later revealing Johnson’s numerous attempts to dodge and delay taking action against the pandemic.

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Disabled Students Thrived During Lockdown Online Learning, but Fear They Will Suffer Again Now.

For years, disabled students campaigned to have their accessibility needs properly met. However, universities had always told students that adjustments necessary for their studies were unreasonable or impossible.

For example, when acting as the Disabled Students’ Officer at the University of Cambridge, I was repeatedly told that it was unfeasible to record all lectures and upload them online for disabled students to access. Campaigns across the UK have faced similar obstacles in campaigning for accessibility for their disabled students.

This all changed when the first lockdown began.

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“Freedom Day” is Anything But for the Disabled and Vulnerable

So, it’s now “Freedom Day”. After watching people attack disability activists for supporting the delay this last month, here it is. I watched last week’s Downing Street briefing from behind my fingers. The Prime Minister stood there ignoring all of the figures. Chris Witty and Patrick Valance flanking him, giving his b*llocks an air of respectability. Both of them appearing to be trying their very hardest not to outright say “I don’t agree with this decision.”

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Pain Chronicles: Right Now, I Need the Sunflower

Pain Chronicles is a monthly(-ish) column from Caroline McDonagh-Darwin about coming to terms with living with a chronic illness. It will include funny stories and brutal honesty, with some thrown in chats with her mum Shaz, and other friends too, along the way.

When mask wearing became mandatory in July last year, I was mostly still not leaving the house. We’re a high risk family, and I felt the government were too hasty in unlocking everything.

When I did have to pop to the shops, I’d don a reusable mask (trying to combat waste) and more often than not I’d only just finish my shopping before having to run outside to fresh air to stave off a panic attack. Face shields were slightly better, although they did elicit some funny looks, and there was still an issue with allodynia where the sponge rested on my forehead.

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The Pandemic Made my Industry Accessible, I’m Worried About Going “Back To Normal”

Back when I was legally blind instead of totally blind, I was lured in by covers just as everybody else was. If I spotted a brown boy on the cover, I’d eagerly pick up the book, wishing to read different perspectives and experiences, and even injustices. I knew a lot about my own injustices as a gay blind man, but I was very ignorant of the system’s ways of stomping on POC every chance it got.